Rights and Legislation for Families with Autism

Autism spectrum disorder (ASD) is a developmental disorder that affects the lives of children and their families in many ways. The struggle for access to appropriate care, inclusive education and respect for the rights of individuals with ASD is a reality for many families around the world.

In this session, we will explore the rights and legislation that protect families with autism, as well as the common challenges they face in the pursuit of a full and equitable life.

Fundamental Rights

Awareness and understanding of autism has increased significantly in recent decades, leading to positive changes in legislation and protection of the rights of people with ASD. However, there are still significant challenges facing families in their quest for quality care and education for their children with autism.

Here, we will address several key aspects of autism-related rights and legislation:

• Right to Education: All children, including those with autism, have the right to an inclusive, quality education that is tailored to their individual needs. This is based on the United Nations Convention on the Rights of the Child.

• Right to Non-Discrimination: Individuals with autism have the right to be free from discrimination on the basis of their disability. This is protected by civil rights laws in many countries.

• Right to Health Care and Therapies: Children with autism have the right to receive evidence-based health care and therapies that promote their development and well-being.
• Right to Communication and Participation: Individuals with autism have the right to effective communication and to participate in making decisions that affect their lives. This is based on the right to participation in society.

• Right to a Safe and Supportive Environment: Children with autism have the right to live in a safe and supportive environment that promotes their dignity and respect.

Specific Legislation and Rights

Special Education Law (IDEA) in the United States: In the United States, the Individuals with Disabilities Education Act (IDEA) guarantees access to a free and appropriate public education in inclusive settings for children with disabilities, including autism. This law establishes specific rights for children with disabilities and their families.

Aqual Opportunity for Persons with Disabilities Act (ADA): The Equal Opportunity for Persons with Disabilities Act (ADA) prohibits discrimination on the basis of disability in employment, public transportation, public accommodations, and places of public access. This protects the rights of people with autism in multiple aspects of life.

United Nations Convention on the Rights of Persons with Disabilities:The United Nations Convention on the Rights of Persons with Disabilities establishes an international framework for the protection of the rights of persons with disabilities, including autism. This treaty has been adopted by numerous countries and emphasizes equal rights and opportunities.

State Level Autism Laws:Some states and regions have enacted specific laws related to autism. These laws may address issues such as insurance coverage for early intervention therapies, training for professionals, and the creation of family support programs.

Common Challenges

Despite existing legislation and entitlements, families with autism still face significant challenges in their quest for a full and equitable life. Some of the common challenges include:

• Unequal Access to Services: Availability and access to diagnostic, therapy, and educational services can vary based on geographic location, financial resources, and other factors.

• Stigma and Discrimination: Stigma and discrimination still exist in society, which can hinder the full inclusion and participation of people with autism.
• Lifetime Care Needs: Autism is a disorder that requires lifelong support and care. Lack of services for adults with